Arthritis & Rheumatism, Volume 63,
November 2011 Abstract Supplement
Abstracts of the American College of
Rheumatology/Association of Rheumatology Health Professionals
Annual Scientific Meeting
Chicago, Illinois November 4-9, 2011.
Health Related Quality of Life and Psychosocial Developmental Trajectory in Young Female Beneficiaries with Juvenile Idiopathic Arthritis.
Haverman1, Lotte, Verhoof1, Eefje J.A., Maurice-Stam1, Heleen, Heymans1, Hugo S.A., Gerlag2, D., Van Rossum1, Marion A. J., Grootenhuis1, Martha A.
Emma Children's Hospital/Academic Medical Center (AMC), Amsterdam, Netherlands
Academic Medical Center, University of Amsterdam, Amsterdam, Netherlands
Background/Purpose:
It is generally recognized that for all children the fulfilling of age-specific psychosocial developmental tasks in childhood is of great importance to adjustment in adult life, including participation in society. For young adults with Juvenile Idiopathic Arthritis (JIA) this is more difficult. We assume that the achievement of psychosocial milestones while growing up (psychosocial developmental trajectory) is also related to labour participation. A part of all young adults with JIA have to apply for disability benefits. This study assessed the health related quality of life (HRQOL) and the psychosocial developmental trajectory of young female beneficiaries with JIA compared to peers from the Dutch general population.
Methods:
Data from the database of the Dutch EMWAjong-study, a Dutch cross-sectional study examining psychosocial factors affecting the employment of young adults with disability benefits (Wajong) because of chronic somatic diseases or childhood derived physical limitations, were used. From the EMWAjong database, 46 young adults (11.1%) reported to have JIA; including 43 females (16.1% of all females in the EMWAjong database). The data of these 43 young females with JIA were used for analyses (age: 25.8, SD = 2.3). The participants completed the RAND-36 (HRQoL) and the Course of Life Questionnaire (CoLQ; psychosocial developmental trajectory). Differences between respondents and the peer group were tested using analysis of variance and logistic regression analysis, both by group and age. Effect sizes (d) and odds ratios (OR) were calculated.
Results:
The HRQOL of the beneficiaries (N = 43) was significant lower compared to the peer group on 6 out of the 8 domains: physical (p<0.001, d=2.6), social (p<0.001, d=0.8) role limitations physical (p<0.001, d=1.3), vitality (p<0.001, d=0.7), bodily pain (p<0.001, d=1.4), health perceptions (p<0.001, d=1.8). In addition, the beneficiaries achieved fewer milestones (p<0.01) in the autonomy (OR 0.26), social (OR 0.23–0.39) and psychosexual domains (OR 0.38–0.47) than the peer group.
Conclusion:
Young females with JIA who have to apply for disability benefits are at risk for impaired HRQOL and a delay in their psychosocial developmental trajectory. We recommend parents, health care providers, occupational therapists and schools to pay systematic attention to the development of social and independent functioning of children with JIA in order to optimise their adaptation to society at the time of transition to adulthood.
To cite this abstract, please use the following information:
Haverman, Lotte, Verhoof, Eefje J.A., Maurice-Stam, Heleen, Heymans, Hugo S.A., Gerlag, D., Van Rossum, Marion A. J., et al; Health Related Quality of Life and Psychosocial Developmental Trajectory in Young Female Beneficiaries with Juvenile Idiopathic Arthritis. [abstract]. Arthritis Rheum 2011;63 Suppl 10 :279
DOI:
