Arthritis & Rheumatism, Volume 62,
November 2010 Abstract Supplement

Abstracts of the American College of
Rheumatology/Association of Rheumatology Health Professionals
Annual Scientific Meeting
Atlanta, Georgia November 6-11, 2010.


The Mary Kirkland Center for Lupus Care (MKCLC): A Multi-Disciplinary Specialized Disease Center.

Persad2,  Pretima, Kim2,  Suzy, Richey3,  Monica, Salmon1,  Jane E., Erkan2,  Doruk, Kirou2,  Kyriakos A.

Hospital for Special Surgery, New York, NY
Hospital for Special Surgery, New York, NY
Hospital for Special Surgery

Background:

The complexity of disease in Systemic Lupus Erythematosus (SLE) and Antiphospholipid Syndrome (APS) creates management challenges that require a multi-disciplinary approach for optimal patient outcomes. Additionally, the increased interest of research in the field has generated the need for better organization in rheumatology practices and clinics in order to more efficiently recruit for research. We responded to these challenges by founding the MKCLC with the primary goal of integrating patient care, patient/physician education, and research.

Purpose:

To report on the organization and growth of the MKCLC over the last year and show that the MKCLC is a candidate model for other multi-disciplinary specialized disease centers at our hospital.

Methods and Structure: Creation:

The Center was launched by its current Co-Directors and Steering Committee with the generous support from Rheuminations, Inc.

Patient Care and Multidisciplinary Model:

The Center was built around the Friday Lupus Clinic and its corresponding multi-disciplinary conference with participation of fellows, "lupus attendings" and social workers (SW). A Center Manager was given the key task to oversee the execution of the Center's goals and its growth. Additional important support roles have been the Center's Nurse Practitioner, who performs initial patient triage and the SW Manager who screens all new patients for their psychosocial needs.

Patient/Physician Education:

Formal multi-disciplinary monthly conferences integrate SLE and related fields, embracing all aspects of care, with an emphasis on lupus nephritis. The Center has created a unique website within the hospital's main site, which highlights the Center's developments and provides resources for patients and staff.

Research:

Patient access to research has been streamlined through the Center's Manager in order to maximize recruitment for industry or investigator-initiated research.

Results:

Since April 2007, 186 SLE and/or APS clinic patients (87% female, mean age: 40, range: 18–78) have been included in the MKCLC database. Of 186 patients: a) 161 (87%) have been assessed by the SW Manager and referred to one of the five culturally relevant support and education programs offered by the Department of SW Programs; b) 99 (53%) have participated in our pre-existing Autoimmune Disease Registry and Repository; c) 88 (47%) have been referred to the Cardiovascular Disease Prevention Counseling Program and d) 42 (23%) have participated in cross sectional, observational or interventional research studies.

Conclusion:

A multi-disciplinary specialized disease center dedicated to SLE and APS has been created to facilitate comprehensive care of patients, physician education, and research. Our Center provides the opportunity to examine whether: (1) specific patient-related education and support initiatives improve clinical outcomes; (2) our coordinated multi-disciplinary approach improves physician education and patient quality of care; and (3) a structured research database and patient screening improves research participation at our center.

To cite this abstract, please use the following information:
Persad, Pretima, Kim, Suzy, Richey, Monica, Salmon, Jane E., Erkan, Doruk, Kirou, Kyriakos A.; The Mary Kirkland Center for Lupus Care (MKCLC): A Multi-Disciplinary Specialized Disease Center. [abstract]. Arthritis Rheum 2010;62 Suppl 10 :2077
DOI: 10.1002/art.29842

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