Arthritis & Rheumatism, Volume 62,
November 2010 Abstract Supplement
Abstracts of the American College of
Rheumatology/Association of Rheumatology Health Professionals
Annual Scientific Meeting
Atlanta, Georgia November 6-11, 2010.
Understanding the Individual Burden of Osteoarthritis: Development of a Conceptual Model.
Busija3, Lucy, Osborne2, Richard H., Buchbinder1, Rachelle
While the importance of osteoarthritis as a public health burden is well recognised, less is known about the impact of this condition at the individual level. Currently, no unifying framework is available for comprehensively documenting health-related consequences from the individual's perspective as existing frameworks are either not designed to represent the views of people with osteoarthritis or do not capture the full range of osteoarthritis-related consequences. The aim of this study was to develop a conceptual framework for documenting health-related consequences of osteoarthritis in affected individuals.
Structured concept mapping (SCM) workshops (n=6) were undertaken, three with patients (n=26) and three with health professionals and health policy makers (n=27) in Australia and in Sweden. The participants were asked to generate statements describing the impact of osteoarthritis on individuals with this condition and those around them. The post-workshop analyses used a mix of quantitative (three-dimensional multidimensional scaling analysis) and qualitative (thematic analysis) approaches to indentify major dimensions of the individual burden of osteoarthritis. A relational algorithm was then used to identify the interrelationships among these dimensions and to construct an integrated theoretical model of the Personal Burden of Osteoarthritis (PBO).
A synthesis of the workshops identified 8 potentially independent aspects of PBO, including Physical distress, Fatigue, Physical limitations, Psychosocial distress, Physical de-conditioning, Financial hardship, Sleep disturbances, and Lost productivity. Physical distress was the key influence on individual health and welfare. One of the major effects of physical distress was impaired physical function. In combination, physical limitations and physical distress lead to psychosocial problems, reduced work productivity, financial difficulties, and loss of physical fitness.
The PBO framework was designed to comprehensively capture the consequences of osteoarthritis on individuals with this condition. The framework provides new insight for individual care and program development for people with osteoarthritis.
To cite this abstract, please use the following information:
Busija, Lucy, Osborne, Richard H., Buchbinder, Rachelle; Understanding the Individual Burden of Osteoarthritis: Development of a Conceptual Model. [abstract]. Arthritis Rheum 2010;62 Suppl 10 :204