Arthritis & Rheumatism, Volume 60,
October 2009 Abstract Supplement

The 2009 ACR/ARHP Annual Scientific Meeting
Philadelphia October 16-21, 2009.

Are Children with Juvenile Idiopathic Arthritis and Their Parents Reliable Reporters of Joint Involvement?

Filocamo,  Giovanni, Pistorio,  Angela, Bertamino,  Marta, Consolaro,  Alessandro, Ferrari,  Cristina, Lanni,  Stefano, Lattanzi,  Bianca


Quantitative joint counts are key outcome measures in children with juvenile idiopathic arthritis (JIA). However, assessment of the whole joints in all patients is time consuming and may be difficult in a busy clinical setting. Self or proxy-report of joint involvement, may help the physician to obtain information on the severity and distribution of arthritis.


To investigate the reliability of self or proxy-report of joint involvement by children with JIA and their parents.


220 children with JIA and 465 parents of children with JIA were asked to score the swelling or pain in 9 joints or joint groups. Afterward, a paediatric rheumatologist performed a formal joint assessment. Agreement between physician, parent, and child was assessed with Cohen's kappa.


Table shows the k values for agreement in joint assessment between physicians, parents and children.

Jointk MD-parentk MD-child
Hand joints0.520.52
Foot joints0.560.34
Cervical spine0.350.69


Agreement between physicians and children and between physicians and parents was similar. Agreement was in the moderate range for all joints, except for the shoulder and hip, for which concordance was poor. Children agreed with physicians better than their parents in rating involvement of cervical spine. Overall, our results highlight the importance of obtaining children's' and parent's rating of joint disease but do not indicate that children's' and parent's assessment is a good surrogate for physicians' assessment.

To cite this abstract, please use the following information:
Filocamo, Giovanni, Pistorio, Angela, Bertamino, Marta, Consolaro, Alessandro, Ferrari, Cristina, Lanni, Stefano, et al; Are Children with Juvenile Idiopathic Arthritis and Their Parents Reliable Reporters of Joint Involvement? [abstract]. Arthritis Rheum 2009;60 Suppl 10 :239
DOI: 10.1002/art.25322

Abstract Supplement

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